Conference Schedule

OCT
27
3pm-10pm

Friday, October 27, 2017

3:00 PM - 7:00 PM
Registration

6:00 PM - 7:00 PM
New Attendee Informal Conference Q&A

7:00 PM - 10:00 PM
Welcome Party


OCT
28
7am-11pm

Saturday, October 28, 2017

7:00 AM - 10:00 AM
Registration Table Open

7:30 AM - 9:00 AM9:00 AM
Breakfast

8:30 AM - 8:45 AM
Welcome

8:45 AM - 9:45 AM
Keynote Speaker: Dr. Mignot "Genetics and Immunology"

9:45 AM - 10:00 AM
Break

10:00 AM - 10:50 AM

  • Integrative Medicine with Dr. Rubin Naiman
  • Narcolepsy 101 with Dr. Todd Swick
  • Creating a 504 with Piper Paul & Glenn Brown
  • Professional Panel
  • Free Art Space
  • Camp Courageous Kids

10:50 AM - 11:00 AM
Break

11:00 AM - 11:50 AM

  • Support Group
  • Fitness Panel
  • Free Art Space
  • Narcolepsy 101
  • Styling Tips for Work, Fun, and Beyond

11:50 AM - 1:20 PM
Lunch and Membership Meeting

1:20 PM - 1:50 PM

  • Brain Donation
  • National Organization for Rare Disorders (NORD)
  • How to Volunteer with NN
  • Support Group 101
  • Free Art Space
  • Preparing for College
  • #Nchat with Mike Heil, Cat Thoma, and Keith Harper

1:50 PM - 2:00 PM
Break

2:00 PM - 2:50 PM

  • Narcolepsy Friendly Tips and Tricks on How to Make Dietary Changes with Gina Dennis
  • Narcolepsy & Aging with Dr. Krahn
  • Creating an Elevator Speech
  • Medications Panel
  • Free Art
  • Advocating and Educating in School
  • NIA

2:50 PM - 3:00 PM
Break

3:00 PM - 3:50 PM

  • Brain Cell Changes in Narcolepsy: Implications for Treatment with Dr. Siegel
  • Different Narcolepsy Medications (including Baclofen) with
    Dr. Ruoff
  • Leveraging Public Policy to Save Lives
  • School Panel
  • Free Art Space
  • YA Information
  • Painting with Nan Kronick

3:50 PM - 4:00 PM
Break

4:00 PM - 4:50 PM

  • Rethinking Narcolepsy Treatment Options with Dr. Thomas Roth
  • Narcolepsy & Pregnancy Q&A with Dr. Todd Swick
  • Insurance
  • How Working Out Affects Your Sleep
  • Free Art Space
  • Sleep Health
  • Nutrition

5:00 PM - 7:00 PM
Restaurant Outing (Optional)

7:00 PM - 11:00 PM
Optional Event


OCT
29
7am-4pm

Sunday, October 29, 2017

7:00 AM - 10:00 AM
Registration Table Open

7:30 AM - 9:00 AM
Breakfast

9:00 AM - 9:50 AM

  • Dream Analysis Q&A with Dr. Rubin Naiman
  • Depression
  • Narcolepsy Medications Panel
  • Free Art Space
  • Youth and Narcolepsy Session for Parents with Dr. Lois Krahn
  • NIA

9:50 AM - 10:00 AM
Break

10:00 AM - 10:50 AM

  • Dentistry
  • Medicines 101
  • Parenting with Narcolepsy with Jason Lagen and
    Sharon Link O'Shaughnessy
  • Pain Management
  • Free Art Space
  • Home Schooling 101
  • Organization

10:50 AM - 11:00 AM
Break

11:00 AM - 11:50 AM

  • Support Group
  • Young Couple Meetup
  • Free Art Space
  • The Language of Narcolepsy
  • Creative Writing with Claire Crisp

11:50 PM - 1:00 PM
Lunch featuring speaker Mali Einen

1:00 PM - 1:50 PM

  • Research
  • Filing for Disability
  • Professional Panel
  • Free Art Space
  • How To Use Social Media with Keith Harper
  • Author Deronte' L. Smith Discusses His Book about a Character, Named Sleepy Steve, a Middle School Boy with Narcolepsy

1:50 PM - 2:00 PM
Break

2:00 PM - 2:50 PM

  • Patient Partnership in Clinical Trials - A Case Study: The Narcolepsy Network and Avadel Partnership
  • Comorbidity
  • Legal Rights in the Workplace
  • Conference Debrief for Youth and Parents with
    Sharon Link O'Shaughnessy
  • Fundraising Opportunities with Keith Harper, Sue Matthews, Louise O'Connell, and Mark Patterson
  • Free Art Space

2:50 PM - 3:00 PM
Break

3:00 PM - 4:00 PM
Closing

A nap room will be available on Saturday and Sunday during the conference.

Please note, the schedule is subject to change. Please check back for updates or download our app.