2022 Conference Presentations

Presentations that were filmed will be available to view on our YouTube channel.

Keynote Presentation: A Journey Through Narcolepsy
Emmanuel Mignot, MD, PhD

Nuts and Bolts of Clinical Research
Edie Stringfellow, VP

Narcolepsy Back to Basics
Michael Thorpy, MD

Living with Narcolepsy: A Patient Experience Panel
Chad Ruoff, MD, Facilitator

Medical Panel
Lois Krahn, MD; Kiran Maski, MD; Emmanuel Mignot, MD, PhD; Chad Ruoff, MD; Michael Thorpy, MD

Narcolepsy in Youth
Kiran Maski, MD

Storytelling & Self Advocacy for Young Adults (Workshop)
Megan McLean (Narcolepsy Network staff)

The Science of Psychosocial Interventions for Narcolepsy
Jason Ong, PhD

Cognitive Behavioral Therapy (CBT) and Mindfulness Workshop
Jason Ong, PhD

Celebrating Diversity in Narcolepsy and Taking Control of our Care (Sponsored by Avadel)
Cecile Martin, FNP-BC, MS, RN; Diana Anderson, MMS PA-C and PWN

Sunosi and Axsome’s Clinical Research in Narcolepsy (Sponsored by Axsome)
Gregory Parks, PhD

Dreem 3 Headband: Investigational Medical Device to Measure Brain Activity (Sponsored by Dreem)
Pierrick Arnal, PhD

WAKIX® (pitolisant): Clinical Trials Results, How It Is Thought to Work, and More (Sponsored by Harmony Biosciences)
Ellen Wermter, FNP

The Relationship Between Sleep and Heart Disease (sponsored by Jazz Pharmaceuticals)
Shawn Candler, MD

Narcolepsy and Mental Health
Lois Krahn, MD

Idiopathic Hypersomnia and Narcolepsy: Similarities and Differences
Lynn Trotti, MD

School Accommodations for Narcolepsy: Understanding 504
Dayna S. Friduss, Esq., Special Education Attorney

Social Security Disability Benefits: What You Need to Know
Anjel Burgess, JD