2023 Conference Presentations

Presentations that were filmed will be available to view on our YouTube channel.

Welcome Keynote: Living with Narcolepsy & Idiopathic Hypersomnia: Pathogenesis, Diagnostics and Co-existing Disorders
Presented by Chad Ruoff, MD

Back to Basics: Narcolepsy & Idiopathic Hypersomnia (Formerly Narcolepsy 101)
Presented by  Lois Krahn, MD

Workshop: Self-Advocacy
Facilitated by Amy Kant, Transition Director

Get Moving! (Nia®)
Facilitated by Sue Dambrauskas

Exploring the Pediatric Journey for Children with Narcolepsy & Idiopathic Hypersomnia
Presented by Rakesh Bhattacharjee, MD

Navigating Transitions for Young Adults
Presented by Shelley Hershner, MD

Workshop: Lifestyle Tips and Tricks
Facilitated by Sharon O'Shaughnessy, Board Member

Workshop: Patient Voice and Supporter Roundtables
Facilitated by Amy Kant, Transition Director

Patient Panel: Living with Narcolepsy & Idiopathic Hypersomnia
Moderated by Chad Ruoff, MD
Panelists: Hurlicia Hardeway, Ishika Sachdeva, & Jelissa Suarez

Avadel: A New Treatment for EDS and Cataplexy in Adults with Narcolepsy
Maggie Lavender, MSN, APRN, FNP-C

Harmony: Exploring WAKIX® (pitolisant)
Dr. Debra Stultz

Jazz Pharmaceuticals: Introducing XYWAV
Jessica Sacks, PhD

Panel: Navigating Clinicians & PWN/IH Relationships
Moderated by Amy Kant, Transition Director
Panelists: Dr. Shelley Hershner, Dr. Lois Krahn, Olivia LaGrone, & Jelissa Suarez

Narcolepsy & Idiopathic Hypersomnia in Later Years
Presented by Michael Thorpy, MD

Workshop: How do you start and run a peer-led support group?
Facilitated by Keith Harper, President

Understanding Medications
Presented by Michael Thorpy, MD

Medical Panel
Shelley Hershner MD, Lois Krahn MD, Michael Thorpy, MD

Takeda: Narcolepsy and Orexin: Pathology and Promise
Dr. Oliver Sum-Ping